The pace of the data revolution has outstripped the ability of existing laws and traditional approaches to address concerns introduced by digital technology. While electronic maternal and child health registries compile comprehensive individual health data Frost et al, personal communication, 2016, the highly sensitive nature of reproductive health information and the vulnerability of women and children living in LMICs demand careful consideration of privacy, confidentiality, and data security. The burgeoning focus on measurement, monitoring and infrastructure and universal health coverage and equity are consistent with registry methodology that involves ongoing, population-based data collection that strengthens data availability, quality and use.
Field studies and research applying the registry concept to maternal health have demonstrated promise in contrast with ad hoc, resource-intense surveys and statistical estimates of maternal mortality (i.e., MMR) that have been criticized for their inability to accurately assess MDG progress. The dearth of timely and accurate maternal and child health data has limited countries’ ability to measure progress in reducing maternal and child deaths worldwide but has galvanized leaders and funders to prioritize strategies to acquire high quality maternal and child health data.Įlectronic health registries (eRegistries) for maternal and child programs provide a unique approach given their potential to support both clinical and public health decision-making, enhance health care coverage, and improve health outcomes by providing individual data along the continuum of care that can pinpoint when, where, and why women encounter health problems. Against this backdrop, in June 2015 the World Health Organization (WHO), the United States Agency for International Development (USAID), and the World Bank released The Roadmap for Measurement and Accountability and Post-2015 5-Point Call to Action that highlight strategies for improving data collection, analysis, access, and use.
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Growing support for strengthening civil registration and vital statistics and the call for more and better maternal health data in 2010 by leadership in eight global health agencies all point to the need to improve data collection strategies in low and middle income countries (LMIC). As the Millennium Development Goal (MDG) era draws to a close and the Sustainable Development Goals (SDG) are ushered in, a shift towards long-term investments, sustainable strategies, and infrastructure development have emerged as new priorities. At the 2014 Maternal and Child Health Summit, World Bank Group President Jim Yong Kim proclaimed, “Our vision is to register every single pregnancy and every single birth by 2030”.
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